The Research Data Commission, which submitted its report to the government this summer, proposes the establishment of a special law governing research databases. The purpose is to protect personal integrity while facilitating research using register data.
“It creates long-term conditions for register research and a stable legal basis for research databases,” said Cecilia Magnusson Sjöberg, Professor of Legal Informatics at Stockholm University, who has led the investigation to the Swedish Research Council’s journal Curie.
The new bill is adapted the EU Data Protection Ordinance (GDPR), and may come into force on July 1, 2019. Read more in Curie (in Swedish): https://www.tidningencurie.se/nyheter/2018/08/29/forslag-ny-lag-ska-underlatta-registerforskning/